National Brain Tumor Society,Director of Public Policy and Advocacy Jobs in U S

National
Brain Tumor Society (NBTS), www.braintumor.org, is the largest nonprofit
organization in the United States dedicated to the brain tumor community. It is
fiercely committed to finding new and effective treatments for patients with
brain tumors and ultimately finding a cure. We aggressively drive strategic
research, advocate for public policies that advance research and meet the
critical needs of the brain tumor community, and enable the voices and
perspectives of the brain tumor community to be heard by

policy-makers.

NBTS
is currently seeking a Director of Public Policy and Advocacy. She/he will have
a key leadership role in four areas:

Brain
Tumor Policy Development: Developing NBTS’ annual public
policy agenda, including its legislative agenda and priorities, as well as
NBTS’ positions on various policy matters.
Advocacy:
Managing, developing and maintaining a nationwide advocacy volunteer
structure.
Representation:
Serving as the main NBTS representative on Capitol Hill, as well as to
coalitions and other organizations.
Policy
and Advocacy Events: Advancing our research and public
policy agenda through convening meetings and events, including our
signature advocacy event called Head to the Hill.

Primary
Responsibilities:

Plan
and carry out activities to recruit, train, retain, and recognize
volunteer advocates.

Work
collaboratively with Advancement, including Marketing/Communications, and
Research Departments to achieve organizational goals.
Prepare
and execute Head to the Hill annual advocacy event and other activities.
Collect
and prepare patient and caregiver stories for use in public policy
contexts.
Create
volunteer-based advocacy actions via electronic or in-person means to
sustain relationships. (Writing/sending action alerts,
designing/coordinating volunteer advocacy teleconferences and webinars)
Maintain
active relationships with members of Congress and their staffs on
legislative priorities.
Develop
supporting materials and documentation for policy positions.
Participate
in relevant public policy coalitions.
Implements
grassroots advocacy strategy.
Develop
content for electronic updates on public policy matters for constituents.
Provide
regular updates to volunteers and mobilize them on policy issues on a
regular basis.
Travel
on occasion throughout the U.S.
Keeping
abreast of public policy changes and how these changes may impact advocacy
and NTBS.
Serve
as a member of senior leadership team

Education
& Experience:Bachelor’s
Degree, (Preferred:Master’s degree, JD, Ph.D or equivalent), with a minimum of
seven years professional experience working with and organizing volunteers,
patients/caregivers. Preferred experiences may include: advocating and/or
conducting public policy research, on-line advocacy.

Required
Skills, Knowledge & Abilities:

Demonstrated
leadership in the public policy arena.
Skilled
at planning and executing specific projects that are part of a larger
strategy.
Experience
and interest in public policy, health care, politics, and the democratic
process.
Interest
in building a powerful advocacy force for the brain tumor community.
Strong
oral and written communication skills including ability to communicate
clearly and concisely in writing and in person.
Comfortable
presenting and facilitating in person, via teleconference or webinar.
Logistical
experience in creating events and opportunities for volunteers.
Commitment
to improving the lives of people with brain tumors.
A
team player who wants to make a difference in the fight against brain
tumors and cancer in general.